Archive for the ‘deafblind’ Category

This was G on 5/31. As you can see, she didn’t really look that great. Swollen and stuff.Image

But, what a difference a day makes. When we visited G this evening, she looked a lot, LOT better, as you can see from the following picture =)Image

Its a G-step. A super-small, barely visible step in the right direction. I’m kinda getting used to G-steps. I won’t call them baby steps, because normal babies make bigger steps than G does.

One of my friends asked if she could sort of officially follow G’s journey and how we deal with it. I said yes, of course, because I want people to know about G. Not for pity or anything like that, but because this situation is very difficult, and I know that I’m not the only one out there going through it. I also know that if there’s a chance I can reach someone who needs to hear that they are not alone, that this can be handled… I need to do it.

I’m the type to educate. Not to sit back and twiddle my thumbs while my world comes crashing down around my ears.

I went to Target today, and got a few weird looks because I was standing in the baby aisle with my eyes closed, feeling up the toys. Because of G’s potential (and likely) deafblindness, I wanted to experience toys the way G would, so I could make sure to get something that would be good for her.

Most baby toys feel very, very boring for the record.

After I got home, I went to some facebook friends. This is what I posted…

Your mission…should you choose to accept it… The next time you go to a store that has baby toys, or even things that are baby safe but not thought of as baby toys… close your ears, your eyes, and feel it up. If it feels interesting, and its not super expensive, take a picture of it with your phone, and message me here on FB with it 

Unfortunately this message will not self-destruct in 10 seconds…

(I decided to suck it up and have some fun with picking out toys for G that are interesting for those who can’t hear or see very well, but I need some help!)

My friends took up the challenge, albeit in an unexpected way. We had one helluva brainstorming session! We ultimately decided that the most important toy component for while G was in the hospital was…

The ziploc baggie.

Not what you were expecting? Well, it definitely wasn’t what I was expecting. But this is how it works…Did you ever do the Halloween thing where you closed your eyes and someone stuck your hand into bowls filled with different stuff? Like ‘eyeballs’ that were peeled grapes? Exactly that! Except we want to keep it not so messy, so we put the stuff in ziploc baggies and put her hands on it. She’s only 7 weeks old, so we can’t expect a lot of interaction, obviously.

I’m planning on baggies filled with ice cubes, warm water, rice, beans, wet spaghetti noodles, beads, and shaving cream, just to name a few things.

A shoutout to The Socially Inappropriate Mom. I googled toys for deafblind children, and her blog was one of the first things that popped up. There is practically no first-hand experience out there, and when you’re going through something like this…firsthand experience is so very, very wanted. I highly recommend taking a look at her blog.

Now, that led me to … Lilliworks. They make toys for deafblind kids and other severely disabled children. Most of that stuff it looks like I can make at home, so I doubt I’ll be ordering much from them, but the ideas were very, very handy. We will be making George a Little Room.

For more information you have to be willing to buy books and dig through medical sites and things like that. Lets face it, who has the time or money for that? So its suck it up, princess, and use what your maker gave ya!

http://www.friendshipcircle.org/blog/2013/03/13/15-reasons-why-its-hard-to-get-along-with-special-needs-parents/

Just. read. it.