Do this (in your head)

Posted: September 6, 2013 in Uncategorized
Tags: , , , , ,

Look at your child, and tell your child that you can make any one physical wish happen for them (within reason). 

They want to go to Disneyworld? Done.

A ride in a helicopter? Done.

Meet Dora the Explorer? Done.

Watch the excitement fill their eyes.

Now, tell them that they can have that one special wish, that people have made it possible, because they have a terminal illness.

Inform them, in the nicest way possible, that the world has shown its generosity to them because they are expected to Not Grow Up. 

Watch their reactions. Watch them struggle to understand what you are saying. Watch them begin to comprehend that they are different. That something is Wrong.

Do this (In your head), and you will perhaps begin to have a taste of what parents of children with terminal illnesses go through.

  1. Albertine says:

    I think of you and your family often. I’ve been reading your blogs for months now and I just want to say that my heart breaks for you. No mother should ever have to go through what you have gone through. It’s not fair. It is fucking not right!
    I also wanna say that I read one of your entries a while back and you mentioned having to remove yourself from MM because of moms complaining about teething or what have you…whenever my kids are driving me insane I often think of you and I feel ashamed because I remember you saying that and my heart shatters. You have made me a better mom for that, and I thank you.

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